On Children's Day, the brightest day of the year, our team congratulated the children whose lives were invaded by the insidious disease of cancer, the children who, like no one else, know the value of life and know how to enjoy small things. Our kids are in the gray walls of hospital every day, and there are so few reasons for fun and…
Karim's mother writes
The first and most disappointing news is that a few days ago we had our long-awaited telemedicine consultation with the Moscow clinic. I was very disappointed with the result. I was very sad about the results: Karimchi is scheduled for a bone marrow transplant, but there is a waiting list of 18 months... We don't have that much time... In our case, time is our enemy... It's recommended that we do an HLA typing. In other words, to determine the compatibility of the potential donor with the child. In our case, I as a donor will not be a match, nor will Karim's sister (as the genetic test showed that the heredity comes from a female line). That leaves only Karim's father... And only after that can we look for a clinic that will be able to perform TKM as soon as possible... I'm afraid to think about what we'll do if the father doesn't match... The search for a donor who isn't a relative and the transplant itself - that's a lot of money... God help us... All the time before the transplantation, Karimchik needs to be stabilized - without strong immunostimulants, our platelets are dropping to almost zero, and our immune system with them... Any infection or virus can be fatal for my son...
In addition to HLA typing, Karim is on weekly injections of two powerful immunomodulatory drugs, Octagam and Enplate, prior to HSCT. Karim's family will have to bear the cost of the tests and treatment, which they cannot afford...
Friends! It's very simple and scary: no money, no treatment... And without immunomodulatory therapy, Karim may not be able to wait for his life-saving transplant. ....
We believe that everyone who is reading this will choose to save this little boy's life!
